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Latest News & Updates

Stay informed about our latest activities, projects, and awareness campaigns across Pakistan.

Upcoming Event

1. LGMD Awareness Day 2026 Preparations Underway

Muscular Dystrophy Pakistan has started preparations for LGMD Awareness Day 2026, which will be observed on 30 September 2026. The event aims to raise awareness about Limb Girdle Muscular Dystrophy and promote early diagnosis and patient support.

Pilot Initiative

2. Newborn Screening Pilot Project

Muscular Dystrophy Pakistan is working on a pilot newborn screening initiative in Taluka Thul, District Jacobabad, in collaboration with Aga Khan University Hospital Karachi. The project aims to facilitate early detection of rare genetic diseases.

Global Networks

3. International Partnerships and Memberships

Muscular Dystrophy Pakistan is expanding collaborations with international rare disease organizations and networks to strengthen advocacy, research, and patient support services in Pakistan.

Past Event

4. Rare Disease Day 2025 Successfully Observed

On 28 February 2025, Muscular Dystrophy Pakistan observed Rare Disease Day through awareness activities and community engagement initiatives to highlight challenges faced by rare disease patients.

Highlights

5. Awareness Day 2024 Highlights

Muscular Dystrophy Pakistan successfully organized LGMD Awareness Day on 30 September 2024, bringing together patients, families, healthcare professionals, and advocates.

Join Us

6. Volunteer Registration Open

The organization welcomes volunteers interested in supporting awareness campaigns, patient outreach, research activities, and community events.