Stay informed about our latest activities, projects, and awareness campaigns across Pakistan.
Muscular Dystrophy Pakistan has started preparations for LGMD Awareness Day 2026, which will be observed on 30 September 2026. The event aims to raise awareness about Limb Girdle Muscular Dystrophy and promote early diagnosis and patient support.
Muscular Dystrophy Pakistan is working on a pilot newborn screening initiative in Taluka Thul, District Jacobabad, in collaboration with Aga Khan University Hospital Karachi. The project aims to facilitate early detection of rare genetic diseases.
Muscular Dystrophy Pakistan is expanding collaborations with international rare disease organizations and networks to strengthen advocacy, research, and patient support services in Pakistan.
On 28 February 2025, Muscular Dystrophy Pakistan observed Rare Disease Day through awareness activities and community engagement initiatives to highlight challenges faced by rare disease patients.
Muscular Dystrophy Pakistan successfully organized LGMD Awareness Day on 30 September 2024, bringing together patients, families, healthcare professionals, and advocates.
The organization welcomes volunteers interested in supporting awareness campaigns, patient outreach, research activities, and community events.